It’s the journey and the destination –

When T. moved in two years ago he was he was two and a half years old. He could sign the words “more” and “milk”. He could also say, “What’s that?” Unfortunately, it took us a couple weeks to figure out what he was saying.

What’s that is a pretty awesome phrase to know if are learning about the world. It’s also a way of getting to know each other. “What’s that?” “Why, that’s Tim Gunn and this is Project Runway!”

Over the course of the last two years there has been much discussion by family members and speech therapists about when he will talk. By that I mean talk in a typical sense – in a way that is understandable all of the time. The conversations are about some deficit. Some lack. Some fear. Some problem.

Ward and I have remained resolute that he will when he does. Part of that has to do with the fact there were so many milestones T. had to master that focusing exclusively on one was not an option.

When he arrived he didn’t walk, he crawled. He was in the 25% percentile of weight and height for Down syndrome boys – he was 22.7 pounds and 32 inches.

He had just had his life upended for the third time in 2 years.

We decided everything he did was awesome. The fact he didn’t curl up in a ball of defeat seemed to be evidence that this was an extraordinary person. The focus would be what he did – not what he didn’t.

During the last two years T. has learned sign and often says the word he is signing. At home he does this all the time. In the world he does it when he is comfortable and when he feels safe to take chances. The talkers of the world like fast communication. People who are learning to talk aren’t about fast.

What brings all this to mind today? Last night, I said to T., “I am going to the bathroom and I will bring down your pajamas.” He responded with, “I’m going to read book.”

That was our four-year old son’s first sentence in spoken word. It was a delight to hear. I yelled, “You said, I’m going to read book!” Ward yelled from the kitchen, “I heard that out here!” T. smiled and hopped up on the coffee table and started reading a book.

Be here now is where it’s at.

This entry was posted in Adopting, Advocacy, By Notatypicalmom, Down syndrome, Random life, Special Needs by Kari Wagner-Peck. Bookmark the permalink.

About Kari Wagner-Peck

Kari Wagner-Peck lives with her husband and son in Maine. She is a blogger, writer & social justice storyteller who unschools with her son. She also has a M.S.W. and was at various times a practicing social worker, documentary videographer and film festival director She is the author of Not Always Happy: An Unusual Parenting Journey, May, 2017, Central Recovery Press. She has been published at The New York Times, The Huffington Post, The Good Men Project, The Sydney Morning Herald, Parents, BLOOM and Love That Max among others. Follow her on Twitter @atypicalson and like her at Not Always Happy Facebook page. Email her: atypicalson@gmail.com

8 thoughts on “It’s the journey and the destination –

  1. Hi Ward and Kari-
    I love reading your blogs….they are always so interesting. You two are doing such a great job of being parents!!! I can’t wait to meet T. Let me know if you will be coming to EC this summer!! I would love to have you come over!! Been trying to get your Mom to come out here, now that it is nicer out!!! That is great that T. loves books!! Keep on with the reading!! Our girls loved books and still do!!!

    Have a good weekend!!

    Tami

    • Tami!

      Thanks for reading and commenting! Oh, we will visit when we come out. You have a good weekdend, too! K.

  2. Hi Kari, I almost never look at facebook except to see what Emma has posted…but I just happened upon your blog. What a treat and an inspiration!! You just added a blast of joy and hope to my day. Thank you. love, Lori

  3. Kari,

    When I read this I could SEE YOU yelling that, I could HEAR YOU yelling that, and I had the biggest smile on my face that I’ve had for a while! I could FEEL YOUR HAPPINESS!

    If only we could all focus on the positives in life. We could all learn something from our little people I think.
    Thank you for making my Monday complete! have a great week.

    Love~karla

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