Blog Block –

I debated titling this entry Tunnel Vision.  A few days after my last so long ago post of October 16th we had to call an ambulance to our house because T. was having an asthma attack. Not the typical ones he has had before but the can’t talk, clawing at the throat and banging his head kind.  For weeks I woke up every hour during the night to make sure he was OK. We now have a pulmonary specialist, we have a new pediatrician and we have a D.O. for osteopathic treatments. Our goal this year had been no visits to the ER (there were 4 last winter). Our new goal is no ambulances ever. Seeing your kid struggle to breathe is _________________.  I don’t know what that word is.

Some things that resulted from that night:

–       T. stopped calling me “Ba” (see Dude Looks Like A Lady) the next morning. I am now Mama or Mommy. Maybe he is saying, “Ok, I can’t really bust your balls anymore because we went through this thing that was pretty real – so I am going to cut you some slack.” He is however still throwing plates, cups, food, etc which must mean he can choose his battles.

–       If possible I am more outspoken.

–       My husband and I rarely argue about stupid $hit.

–       While I am apt not to sweat the small stuff so much I am still driven to tears by someone moving my cheese.

Some things that are likely not the result of that night:

–       I have changed my mind about the film Anita (see Brad Pitt has Down syndrome continued – October 10th). I think one of the points of the film was that she had been treated like a child by her family. Not that they were awful people but humans. My political correctness overrode my artistic appreciation. I also watched a clip with the actress Alexandra Manzo and she inspires me. Check it out: http://www.youtube.com/watch?v=O74KxLDxzQA&feature=related

–       We have had numerous looks at our blog by people searching for information about Brat Pitt and Angelina Jolie twins and do they have Down syndrome (see Brad Pitt has Down syndrome – October 8th). To those Nosey Parkers I hope you learned something about Down syndrome.

So, I am back.

This entry was posted in By Notatypicalmom, Down syndrome, Health, Marriage, Medical, Parenting, Special Needs by Kari Wagner-Peck. Bookmark the permalink.

About Kari Wagner-Peck

Kari Wagner-Peck lives with her husband and son in Maine. She is a blogger, writer & social justice storyteller who unschools with her son. She also has a M.S.W. and was at various times a practicing social worker, documentary videographer and film festival director She is the author of Not Always Happy: An Unusual Parenting Journey, May, 2017, Central Recovery Press. She has been published at The New York Times, The Huffington Post, The Good Men Project, The Sydney Morning Herald, Parents, BLOOM and Love That Max among others. Follow her on Twitter @atypicalson and like her at Not Always Happy Facebook page. Email her: atypicalson@gmail.com

6 thoughts on “Blog Block –

  1. I phoned your mom last night to wish her a “Happy New Year” and asked how “the girls are?” I got filled in about the wedding and all about your son. Sounds like things are going well. Further, she told me of your blog site, and here I am. Your dang brother dosen’t call or write. I’ll deal with him later. Sue and I wish you and yours a super new year!!

    Big John

    • I am so psyched you went to our blog! West Ender’s rule! Keep bugging him – that’s what I do! Super new year to you and Sue! Nice to hear from you. K.

  2. Kari-Welcome back. I missed your blog but figured “life happened”. So sorry it was in the form of a medical emergency. Been through that twice with Ky and can honestly say it sucks. Love you guys!!

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